Leading Edge Patient Registries

Making medical records meaningful

Mediocre data is one of the prevalent risks facing registries today. Organizations can spend years collecting data to discover that their data is marginally useful. Unfortunantly there are too many stories of registries that were found to be a waste of money.

We build specialized Patient Registries that are tuned to the specific needs of a disease state which fully validate it's data as it is entered and provide a rich set of real time reporting.

We have been fortunate to work with an innovative professional within the registry community and have created a custom registry website solution that is easily on the leading edge of the current offerings. We use the full capabilities of the web to create sophisticated data entry screens, real time, in-depth reporting of results and manage the data exceptions as they happen.

Our custom patient registry websites:

• Collect clean validated data while it is being entered.
• Show Organizations immediate benchmarking summaries of how they are performing compared to national averages.
• Give investigators real time, in depth reporting of results.
• Notify respondants when follow up activity is required.
• Allow investigators to export clean data that is anaylsis ready.
• Organizations can export their data in a user readable format.
• Are HIPAA compliant.

Example of Our Work

INSTOR

An online stroke patient registry.

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SageKey was hired by the Neurovascular Research Foundation to develop a custom patient registry used to monitor and assess the effectiveness of several types of stroke treatments and techniques. They had been using an off-the-shelf registry solution for several years; however, they decided they needed a custom solution after being repeatedly limited by poor data validation and inadequate customization.

The software we developed allows accurate, validated data to be collected without over burdening the end user. The built in benchmarking provides immediate results to the end users and registry administrators. The software was developed to be HIPAA compliant and all patient related data is encrypted to protect the privacy of the patients.

Notable Features

• VB.Net
• SQL Server
• HIPAA
• SVG
• Ajax
• Javascript