Testimonial – Instor
An online stroke patient registry
SageKey was hired by the Neurovascular Research Foundation to develop a custom patient registry used to monitor and assess the effectiveness of several types of stroke treatments and techniques. They had been using an off-the-shelf registry solution for several years; however, they decided they needed a custom solution after being repeatedly limited by poor data validation and inadequate customization.
The software we developed allows accurate, validated data to be collected without over burdening the end user. The built in benchmarking provides immediate results to the end users and registry administrators. The software was developed to be HIPAA compliant and all patient related data is encrypted to protect the privacy of the patients.
As the past president of the Society of Neurointerventional Surgery and founder, Medical Director, and President of the NeuroVascular Research Foundation, I have been involved with the mandates, creation, and design of patient registries for over a decade. The Interventional Stroke Therapy Outcomes Registry (INSTOR) tracks all critical processes involved in emergency stroke therapy and analyzes resultant the clinical outcomes in order to improve patient mortality and morbidity. We initially built the registry using a well-known dedicated patient registry company but after 3 years it was clearly apparent that much effort was needed for minimal useful results and the registry failed to fulfill the intended purpose.With lessons learnt from this, we performed a search and chose SageKey to rebuild INSTOR. We are very thankful we did. I worked closely with SageKey to create a Patient Registry that is now changing the quality of care for stroke patients in the USA and represents what is capable of being done with techniques. This would not have occurred without SageKey. If your group desires a patient registry more complicated than an excel spreadsheet, SageKey is the company for you.